Cureduchenne在Newport Wine Auction的第七届纳帕(Newport Wine Auction)中筹集了超过150万美元
Southern California's Premier Wine Event Brought Together Acclaimed Napa Valley Vintners Under One Roof to Raise Funds for CureDuchenne
加利福尼亚州纽波特海滩。,,,,2021年11月10日/PRNewswire/ -- CureDuchenne and Vintner Chair Bryant Estate hosted the Seventh Annual Napa in Newport Wine Auction on11月6日, 2021年,在华尔道夫酒店Resor君主海滩t inDana Point。年度筹款活动筹集了$1.5 million为了帮助找到治疗Duchenne肌肉营养不良的方法。
Napain Newport brought the most acclaimed vintners from纳帕谷在一个屋顶下一起提供最好的年份,并为450多个奥兰治县的顶级企业领袖,影响者,企业家,慈善家和葡萄酒鉴赏家。该活动为Cureduchenne筹集了资金,Cureduchenne是一家全球非营利组织,致力于寻找Duchenne肌肉营养不良的治疗方法。迄今为止,该活动有助于提高超过750万美元对于策展人。
“We are so thrilled with the outcome of this year'sNapain Newport gala, connecting passion and purpose to help improve the lives of everyone affected by Duchenne and accelerate a cure for my son and all the individuals living with Duchenne around the world," said CureDuchenne CEO黛布拉·米勒(Debra Miller)。“在我们慷慨的社区的无情支持下,我们的组织能够为Duchenne肌肉营养不良及其亲人的人带来真正的变化。”
Duchenne muscular dystrophy is a fatal genetic disease. It is the most common and severe form of muscular dystrophy, mainly found in young boys. It affects 15,000 children in美国and 300,000 worldwide with no known cure.
Southern California'spremier wine event brought more than 45 of纳帕的最好的酿酒厂共同提供了邀请人的盛大葡萄酒。客人接受了葡萄酒商主持的餐桌的待遇,这是一个精致的名人厨师设计的晚餐菜单克里斯·谢泼德(Chris Shepherd)以及充满活力的现场拍卖,具有可收藏的葡萄酒,异国情调的演出和千载难逢的体验。
“Napa在纽波特来说,这是一个绝佳的机会纳帕谷community to come together and support an important cause," saidBettina Bryant,布莱恩特庄园葡萄酒院。“今年成为葡萄酒师的葡萄酒主席,以提高人们对这种毁灭性疾病的认识并有助于影响杜尚肌营养不良症患者的生活,这绝对是一种荣幸。”
成立于纽波特海滩by parents of a son living with Duchenne, CureDuchenne employs an innovative venture philanthropy model to fund groundbreaking research for a cure and support programs for those living with the disease, while advocating for early diagnosis and better access to treatments. For more information, please visitcureduchenne.org。
For more information and to reserve a spot at the 2022 event, please visittheapawineseries.com。
关于Cureduchenne
Cureduchenneis recognized as a global leader in research, patient care, and innovation for improving and extending the lives of those with Duchenne muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 individuals living today. CureDuchenne is dedicated to finding and funding a cure for Duchenne by breaking the traditional charitable mold through an innovative venture philanthropy model that funds groundbreaking research, early diagnosis, and community education. For more information on how to help raise awareness and funds needed for research, please visitcureduchenne.org。
SOURCE CureDuchenne
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